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Genetic Secrets: Protecting Privacy and Confidentiality in the Genetic Era
by Mark A. Rothstein (Editor)
Genetic Secrets: Protecting Privacy and Confidentiality in the Genetic Era
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Twenty-three articles by professionals from law, medicine, bioethics, public health, science policy, clinical genetics, philosophy, and other fields grapple with new issues of medical privacy and confidentiality brought about by recent advances in genetic research. Coverage includes topics such as genetic information in the schools, laws to regulate the use of genetic information, environmental population screening, public health lessons from the HIV experience, European data protection law, and implications of testing for health and life insurance. The book concludes with a recommendation of a framework for deciding future policy written by the editor.

Book Description
The dramatic explosion of information brought about by recent advances in genetic research brings welcome scientific knowledge. Yet this new knowledge also raises complex and troubling issues concerning privacy and confidentiality. This thought-provoking book is the first comprehensive exploration of these ethical, legal, and social issues.

The dramatic explosion of information brought about by recent advances in genetic research brings welcome scientific knowledge. Yet this new knowledge also raises complex and troubling issues concerning privacy and confidentiality. This thought-provoking book is the first comprehensive exploration of these ethical, legal, and social issues. Distinguished experts in law, medicine, bioethics, public health, science policy, clinical genetics, philosophy, and other fields consider the many contexts in which issues of genetic privacy arise - from research and clinical settings to workplaces, insurance offices, schools, and the courts.

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